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“Aside from providing personal moral support, Komunitas Taufan also helps patient’s families with additional expenses needed when caring for their children in the hospital, such as transportation costs, milk, diapers, etc. These are not covered by BPJS (government insurance scheme) and from my personal experience, often are needed most and must be made available.”
Source: Komunitas Taufan: A Pillar of Support to Sick Children (Jakarta Globe, January 2014)
“Patients need to be entertained an their parents need a shoulder to lean on… When the child has undergone years of treatment, we call them Professor. If only for a few monhs, we call them Chief (of the district)… During the day, we often joked around and laughed, but in the evening, you hear the parent cries…”
Source: Not Wanting Those Children to Suffer the Fate of Her Child (Jawa Pos, October 2014)
“New patients usually receive a lot of support from relatives and friends in the beginning. But after a month or two, the amount of support dwindles. That was also what I experienced… The parents must be strong so their child can also be strong.”
Source: Solidarity to Lighten the Burden (Kompas, March 2015)
What People Say
The work that Mama Taufan has done over the past 6 months to provide support and moral boost for parents and patients, especially my child Adzillah has been very helpful in lifting up her spirits. Very beneficial especially during hospitalization. With Mama Taufan coming, there is a certain cheerfulness arising in her making her smile, and importantly, she then wants to start eating again.
When you're feeling down and disappointed by what life is giving you, try and visit the hospital.
Talk to child patients who care none with life's ordeals. For their hopes and dreams are sky high, unpolluted with resentment and disappointment towards their God. Watch the twinkle in their eyes, how life shines bright, undiminished by the shadow of death their parents often hear from others.
Now, look at your problem again in the mirror, how big is it now?
Thank you so much Komunitas Taufan... your help is very meaningful for us patients with high-risk illnesses, for transportation costs to/from the hospital, daily needs during our stay at the hospital... from which we know not when we can return home. May God bestow upon you more wealth, and that his blessings always fall upon all the volunteers, donors and all of us, amen.
There is Rizky, a handsome 3 years old boy who've lost his right eye because of retinoblastome, who is very much in high-spirit as he waits for radiotherapy to exterminate the remaining cancer cells in his body. You have to see him! He is running about so excited to paint a car on his bag. You really have to see him!
There's also Riska who've lost the movement in her legs because of leukemia. She is still so excited about her dream of becoming a chef. Ah, how small we are compared to her!